Sunday, August 08, 2010
2010 WHS Conference
The whole family took a long drive to attend the WHS conference in Salt Lake City Utah. It was a wealth of useful information for newbie parents like us. We gained a lot of knowledge regarding the genetics aspect of the syndrome as well as ideas on the how to’s for the many concerns associated with the syndrome (i.e. feeding, sleep, seizures). I met the other WHS mommies I've met in cyber space and the best part was meeting other kids and adults like Isabella. It was very reasurring for me to see what she can grow up into. It reinforced the “can do" approach that I have been sporting lately to an “I can do this” level.”
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2 comments:
I really wish that I could have been there this year to meet you in person; I feel a little jealous that you had the chance to meet some of the mommies we talk to online in person and could hug babies Bria, Riley and (little girl) Savannah. Hopefully, everyone will make the trek out to Indianapolis in 2 years-- we are definitely planning to attend that one! In the meantime, I love hearing updates on Isabella and sharing this journey with you! xo
We met at the conference (I'm Frank's mom), and it was so great to be able to meet you. I didn't know what to expect at the conference but am SO glad we went. I learned a lot and was especially grateful to be able to interact with older 4p- kids and adults and their parents. It's such a positive group of people, and it will be fun to see Frank and Isabella and all the other beautiful kids we met grow up to accomplish so much more than I had originally been led to believe was possible. I'm already looking forward to the next one in Indianapolis and hope to see you there!
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