April 16th

For all of you who want to be in the know, Wolf Hirschhorn Syndrome (WHS) is the 

deletion of the p-arm of the 4th chromosome, WHS is also known as 4pminus (4p-).

Isabella may be lacking some genetic material, 

but her real story, goes beyond what is dictated by science.  

She may be a chromosome arm short, but she most definitely has an overabundance of AMAZING!  

April 16th is now designated as a special day to create
Wolf Hirschhorn Syndrome awareness.

So now we have birthdays, milestone days, AND April 16th just to celebrate Isabella's AWESOMENESS!